Tuesday, June 30, 2009

Over a year later, and so much has happened. Let me just summarize...
--many visits to Children's Hospital in Calgary, all test results coming back negative
--some stays for Jenny in the mental health ward at Children's, to give us some respite and to try to shed some light on her condition.
--our insistence that something physical was causing these psychological symptoms seemed to get less and less acceptance (January 2009).
--a suggestion from a friend led us to more research, sending to California for a blood test kit, and finally a positive diagnosis - LYME DISEASE (or in Jenny's case, neuro-Lyme)
--treatment - no more psychotics, but rather mild medications - doxycycline and plaquenil (March 2009)
--rapid improvement for Jenny; her teachers said it was like getting a brand new student!
--Jenny plateaued and then started to regress in May. So now she has switched from doxy to Clarithromycin in June, and is in the middle of a "herx" reaction (common when the new medication starts working, breaking down the poisons; symptoms get worse for a time before improvement begins).

We continue to be thankful for God's leading this year, especially as Jenny's relationship with God has reached a new level (she was recently baptized). It has been a very tough year, and we are definitely not "out of the woods" yet, but God has been faithful.